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From Individual Advocacy to Systemic Change
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Siobhan McCurdy
Education and Advocacy Coordinator, National Multiple Sclerosis Society, AZ Chapter
Joe Rubio
Lead Organizer, Valley Interfaith Project, AZ
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Values, Beliefs and Attitudes
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Marta Urbina, Chief
Office for Children with Special Health Care Needs
Bureau of Women’s and Children’s Health
AZ Dept. of Health Services
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Traditional Belief System
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Connie Bremner
Carrie Bear Chief Evans
Title VI Director and Direct Support Coordinator, Blackfeet Eagle Shield Center
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Advocacy in these Difficult Political Times
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Timothy J. Schmaltz, CEO
Michele White, MSW
Protecting Arizona’s Family Coalition
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Physical and Mental Challenges of Dementia-Impaired Persons and Their Impact on Behavior and Caregiver Stress
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Croissant Fridley
Gero-Resources
Mary Chaput
Program Director
Respite Care Referral and Family Caregivers Support Programs
Anne Arundel County, MD
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Finding the Keeping a Respite Worker
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Val Crossant
Director of Respite Services
Easter Seals Wisconsin
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Laughter Yoga
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Karen Richards
SCAN Connections Resource center
SCAN Health Plan Arizona
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| The THINK GROUP Process for Defining "Respite" |
Jennifer Rosenbaum
Director, NY Lifespan Respite Grant Initiative, NY State Office for the Aging
Maureen Murphy
Director, NY Caregiving and Respite Coalition
Karen Iovino
Abernathy NY Lifespan Respite Grant Initiative
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Using Data Successfully to Drive Your Program: Program Evaluation and Evidence-Informed Respite Programs
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MaryJo Alimena Caruso
Coordinator, CareBreak at the Watson Institute, Sewickly, PA
Jennifer Aberthany
Tennessee Respite Coalition
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Increasing Awareness of Alzheimer's Disease Among Arizona Native Americans
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Filmer Lalio
Community Outreach Coordinator
Banner Alzheimer’s Institute
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Caregiver Cooperatives: Creating Your Own Respite Care
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Gerald Nebeker
Utah Caregiver Cooperative, Inc.
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Relationships Ensure Successful Partnerships
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Phyllis Stephenson
North Carolina Respite Care Coalition and NC Easter Seals/UCP
Alicia Blater
Lifespan Respite Project Director
North Carolina Division of Aging and Adult Services
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The Respite Learning Portal
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Leslie Atkinson
Executive Director
SafeGuards Training
Richmond Hill, Ontario, Canada
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Partnering with your State's Title V Maternal and Child Health Program
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Joy C Liebeskind
Statewide Coordinator
Connecticut Lifespan Respite Coalition
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Innovative Ways of Supporting Complex Behaviors within Respite
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Carrie McEachran, Director
Respite Services
Connie Smits
Supervisor, Adult Respite Services
Kristy Bond, Supervisor
Children’s Respite Services
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Disaster Preparedness: How to Build a Safety Net
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Stacy Martinez
Self-Service Respite Program Manager
Bay Respite Care
San Francisco, CA
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The Voucher Model for Delivery of Respite Services
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Java Bennett
Director of Respite Services
United Cerebral Palsy of Huntsville and Tennessee Valley, Inc.
Huntsville, AL
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Enhancing Quality of Life for Persons with Dementia and their Caregivers
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Jan Dougherty
Family and Community Service
Banner Alzheimer’s Institute
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Transforming Crisis Nursery Care Part A: Action, Advocacy, Access
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Natalie Leek-Nelson
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High Burden Self-Identified Family Caregivers Across the Lifespan: A Niche Population Both Feisty and in Need
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Suzanne Mintz
President and CEO
National Family Caregivers Association
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Building Trust in Respite Care
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Sherylynn Laich
Executive Director
UPTOHIM Ministries
Joy Matson, Board Member
UPTOHIM Ministries
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Community Based and Supported Respite Programs
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Tonya Frye
Executive Director
Desperate for Respite
Houston, TX
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Outcomes Based Program Evaluation
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Vidya Sundar, Ph.D.
Institute on Disability
University of New Hampshire
Durham, NH
Cathy Creapaux
NH Bureau of Elderly and Adult Services
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Building Local and State Lifespan Respite Networks
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Sharon Kaiser
Early Childhood Program Specialist
Special Medical Services
Title V, Children with Special Health Care Needs
Division of Community Care Services
Bureau of Developmental Services
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Independent Monitoring for Quality: An Evidence-Based Strategy for Building and Sustaining Effective Programs
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Guy Caruso
Western Coordinator
Institute on Disabilities
Temple University
Philadelphia, PA
MaryJo Alimena Caruso
CareBreak
The Watson Institute
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Transforming Crisis Nursery Care Part B: Programs, People, Places
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Natalie Leek-Nelson
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| Sharing the Care: An Innovative Model for Building Respite Awareness and Capacity within Communities |
Linda Lamberth
Program Manager
Alabama Lifespan Respite Network
Java Bennett
Director of Respite Services
UCP of Huntsville and the Tennessee Valley, Inc.
Melissa Enfinger
Respite Project Coordinator
Alabama Lifespan Respite Network
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Transforming VA's Respite Care Progam
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Daniel Schoeps
US Department of Veterans Affairs
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Survivor: How to Keep Your Torch Burning
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Barbara Donati and Joan Rafferty, Co-Directors
Central Massachusettes Respite Project
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Laughter Therapy/Reduce Stress
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Lynn Petersen
Independent Living Advocate
Arizona Bridge to Independent Living
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Accepting and Achieving Respite
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Cheryl Dinnell
Coordinator
Nevada Lifespan Respite Care Program
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Innovation in Successful Collaborative Implementation of Web- Based Respite Registry
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Jeffrey Keilson and Elenore Parker
Rewarding Work Resources, Inc.
Boston, MA
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Creating the Caring Network: Training Program for In-Home Respite Providers
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Val Croissant
Director of Respite Services
Easter Seals Wisconsin
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Respite is as Individual as You and Your Situation
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Kelly Reese
Regional Coordinator
Well Spouse Foundation
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National Respite Coalition Policy Update: Advocacy for the 112th Congress
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Jill Kagan
National Respite Coalition
ARCH National Respite Network
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Innovative Ways to "Connect" Caregivers with Respite Workers
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Louise Bruce
Founder and Volunteer Executive Director
The LaChris Connection
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Small Communities - Big Impact
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Rachel Minton
R&R Respite Care Program Manager
Area Agency on Aging
Arizona Region One
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Improving Health and Quality of Life for Today's Caregivers
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Melanie Mitros, PhD
Director, Arizona Living Well Institute
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Using Data to Support Innovative Respite Network
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Barbara Snyder
Project Manager, Delaware Lifespan Respite Care Network
Director of Corp/Fdn. Relations, Easter Seals DE & MD’s E. Shore
Janet Harper-Wooley
Senior SW/Case Manager
DE Division of Service for Aging and Adults with Physical Disabilities
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